Laura Sides carries a rare genetic mutation that gives her early onset dementia, with physicians forecasting her decline to begin between ages 46 and 48. After completing genetic counselling and receiving her positive test, she relocated from Australia to the UK and participated in medical trials. The diagnosis altered major life milestones, prompting her decision not to have children and introducing challenges to romantic relationships. At age 43, she prioritizes simple outdoor routines and staying close to those who offer security.
Key points
Anticipating early cognitive decline prompted Laura Sides to shift her focus away from la…: Anticipating early cognitive decline prompted Laura Sides to shift her focus away from large ambitions toward everyday happiness.
Revealing an early dementia diagnosis frequently impacts romantic prospects, though suppo…: Revealing an early dementia diagnosis frequently impacts romantic prospects, though supportive partners can still provide meaningful reassurance.
Participating in clinical trials allows individuals facing early onset conditions to acti…: Participating in clinical trials allows individuals facing early onset conditions to actively engage with medical research.
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If you could find out if you had a gene that would cut your life short, would you?
This is the dilemma Laura Sides faced when she was offered a test for the rare form of early onset dementia that her dad was diagnosed with in his 40s.
Laura spoke to Dr Sian Williams, host of BBC Radio 4's Life Changing podcast, about her decision to take the test and how it has shaped the rest of her life.
Growing up, Laura says she always felt close to her dad as they had a "similar nature". He was a GP and "the most amazing doting father," she says. When his Alzheimer's symptoms became more severe, Laura dropped out of university to care for him.
"We did have a really lovely time," she says, remembering trips to a lighthouse and collecting coasters. "I'd run him baths and just play music and pour jugs of hot water over his head and he loved it."
It was at a hospital appointment with her dad when a doctor told Laura she had…
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